Friday, April 20, 2012

Evan Andrew

If you would like to read Evan's story start here March 2009
Evan was born on March 10, and passed away on March 16, 2009. To summarize his story. We knew Evan had a heart defect, Double outlet right ventricle with a VSD. He was born at UAMS so he could be transferred to the CVICU at Arkansas Children's hospital within an hour of birth. After he was born it became evident that something else was wrong. He was diagnosed with Full Trisomy 13 on March 13, 2009 (which is also National Trisomy 13 awareness day). The staff with the CVICU at Childrens, our church, our friends, and our family have simply been amazing the past three years. Not a day goes by that I am not reminded about something with Evan. My sweet friend, Steph, started Evan's Project in memory of Evan. It has been a blessing to work with the NICU and Ronald McDonald Family Room at our local hospital and it gives me an outlet for my grief. Thank you for reading about my son. A mother's greatest fear is that her child will be forgotten, so thank you for helping people remember.

So also you have sorrow now, but I will see you again, and your hearts will rejoice, and no one will take your joy from you. John 16:22

Wednesday, April 18, 2012

Photo a Day ~ Day 70

This was Evan's birthday. Garrett went with me to pick everything out and really wanted to celebrate Evan's birthday. He is such an advocate for his little brother. He makes sure no one forgets.

Photo a Day ~ Day 69

I just thought she was so cute, sitting up there with her table with her snacks, clapping when they did on tv.

Photo a Day ~ Day 68

Waking up is just so rough!

Photo a Day ~ Day 67

She loves to play in the dogs crate. I just don't get it! Ha!

Photo a Day ~ Day 66

It is blurry, but I don't have many pics of me with the girl!

Photo a Day ~ Day 65

Sticker toes!

Photo a Day ~ Day 64

Sean ran his 4th Marathon (3rd Little Rock Marathon) in memory of Evan. Grace ran the last mile with him. My goal is one day to at least run the half marathon with him.

Photo a Day ~ Day 63

Pizza and cookie party in the hotel room!

Photo a Day ~ Day 62

Napping baby. I love taking pics of her while she is sleeping, she looks so sweet!

Photo a Day ~ Day 61

Making her pics. Ha!